Focus on Rare Disease: Decoding genomes, unlocking therapies (2019)

Welcome Anna Greka
Ó³»­´«Ã½; Brigham and Women’s Hospital; Harvard Medical School

Beyond the Diagnosis: Rare disease awareness and advocacy through art
Suzanne Scott
Beyond the Diagnosis

From a child's fatal diagnosis to tailor-made treatment in one year
Timothy Yu
Boston Children’s Hospital; Harvard Medical School

Julia Vitarello
Mila's Miracle Foundation

Precision medicine for rare disease
Matt Might University of Alabama

Q & A panel
Moderator: Anna Greka, chair of Focus on Rare Disease
Panelists: Timothy Yu, Julia Vitarello, Suzanne Scott and Matt Might