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This event was originally broadcast LIVE from the ӳ����ý on February 27th, 2023.

In the United States, a disease is considered “rare” if it affects fewer than 200,000 individuals. More than 7,000 diseases fit the bill, and all told, between 25 and 30 million Americans are living with a rare disease. The majority of these diseases are genetic. This year, ӳ����ý of MIT and Harvard in collaboration with The Termeer Foundation are hosting Accelerating Rare Disease Research: Patients as Partners to highlight both the patient and research perspectives.

ӳ����ý is committed to uncovering the genetic roots of rare diseases and to using those insights to develop new treatments. With projects spanning multiple disease areas, ӳ����ý scientists are using genetics, functional genomics, computational biology, and chemical biology to better understand and ultimately seek effective treatments for rare diseases.

Building on the bold legacy of Henri Termeer, who pioneered groundbreaking treatments for rare diseases, The Termeer Foundation is a nonprofit organization focused on connecting life science innovators and catalyzing the creation of new medicines.

For more information about Rare Disease Day at the ӳ����ý visit: /rare-disease-day